Life with holoprosencephaly
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- Miracles
- Early Expiration Date
- Back to Blogging
- Time to get back in shape. Oh how I missed this, its been months!
- Good morning. Look who's feeling much much better :-)
- Feeling better!!
- At icu now. Doctors trying to figure out why Nathans having these problems. He is awake and watching spider man. Every time we take off the oxygen he desats, so still have a ways to go. Thanks for your prayers!!!! Theyre definitely helping!
- Seems the helium is working. A few minutes ago they were talking about intubation, now the doctor came in and said hes not sure he even needs to go to ICU. Hes awake and his breaths are much deeper Prayers are working! Wow this has been one of the scariest days of my life.
- Still struggling to breathe, cant seem to keep his 02 sats. They are going to try giving him helium with oxygen.
- Stable now. Requiring oxygen. Theyre admitting him to ICU.
- Tons of doctors rushing in worse than we thought pray pray pray
- Back at the hospital, pneumonia we're thinking.
- Up in the Air
- Trying Something New
- Ready for Mothers Day lunch.
- Enjoying the new kitchen :-)
- Cheese!
- Having a blast at Chuck E Cheese with school mates!
- Prayers are working!
- Bounce house!!!
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Hi,
I gotta say Nathan really touches me. I have been having some neurological problems my self and i’ve made it to the age of 21 and gotten to do lots of things poor little Nathan has not. He is an amazing little miracle and I want you to know that he is on this planet for a reason, God doesn’t do anything without reason and I am so sure that Nathan has an extremely important mission in his life that God wants him to carry out. That’s why he’s here. you’re right, he is a blessing and if he were any other way he wouldn’t be your same Nathan, right?Don’t ever lose hope, I bet he could even turn out to be a doctor or lawyer someday! I can tell just by looking at him that despite all the troubles with his brain there is a smart little man in there. Also my cousin Thomas, who is 7 has some problems like Nathan. He got little glasses when he was just a few days old. He requires lots of therapy like your son, he is even a year older and cannot talk at all, he requires a special wheel chair and an elevator in the house. Your son was very lucky in the speech department. Just remember that your making new strides every day and your in my prayers. I really am wishing the best for you and your family and will tell my friend Christie to add you to her prayer group.