It’s called “Hold your kids tight and squeeze them with love while swinging in the hammock” therapy.
And my other favorite new therapy…it’s called
“Dress up, watch, and play with your baby until your heart bursts with joy” therapy:
Life with holoprosencephaly
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- Miracles
- Early Expiration Date
- Back to Blogging
- Time to get back in shape. Oh how I missed this, its been months!
- Good morning. Look who's feeling much much better :-)
- Feeling better!!
- At icu now. Doctors trying to figure out why Nathans having these problems. He is awake and watching spider man. Every time we take off the oxygen he desats, so still have a ways to go. Thanks for your prayers!!!! Theyre definitely helping!
- Seems the helium is working. A few minutes ago they were talking about intubation, now the doctor came in and said hes not sure he even needs to go to ICU. Hes awake and his breaths are much deeper Prayers are working! Wow this has been one of the scariest days of my life.
- Still struggling to breathe, cant seem to keep his 02 sats. They are going to try giving him helium with oxygen.
- Stable now. Requiring oxygen. Theyre admitting him to ICU.
- Tons of doctors rushing in worse than we thought pray pray pray
- Back at the hospital, pneumonia we're thinking.
- Up in the Air
- Trying Something New
- Ready for Mothers Day lunch.
- Enjoying the new kitchen :-)
- Cheese!
- Having a blast at Chuck E Cheese with school mates!
- Prayers are working!
- Bounce house!!!
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Looks like the best therapy yet! There is nothing better than a hammock! You all look beautiful!
I hope Owen had a great Daddy’s day! He is a great Dad just like my Hubby! Your post about Owen was beautiful…we had a great day with my Dad and Chris Sr.
Cj and Ryan laughed ALL day and I cooked up a storm!!!
Ahhh. . . some of the best therapies out there.
I still think Belle looks like a little tiny Owen.
I think you’ve hit upon a therapy the whole family will look forward to each day! Enjoy!
Love it!!!
I love the new pics! I was actually thinking of a topic u could talk about. Any thoughts on hormone therapy to stunt growth? Nathan is still young and is alot lighter to carry then Emily. But I’ve been discussing it with my nurses. I saw on Tv parents that removed their daughters overies and started her on hormones to stunt her growth. I don’t think people should judge any parent until they have been put in that situation of having to carry a 100 pound child around. Just a thought for a topic for ya.
http://www.cnn.com/2008/HEALTH/conditions/03/12/pillow.angel/index.html
heres the link to the article