Life with holoprosencephaly
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- Miracles
- Early Expiration Date
- Back to Blogging
- Time to get back in shape. Oh how I missed this, its been months!
- Good morning. Look who's feeling much much better :-)
- Feeling better!!
- At icu now. Doctors trying to figure out why Nathans having these problems. He is awake and watching spider man. Every time we take off the oxygen he desats, so still have a ways to go. Thanks for your prayers!!!! Theyre definitely helping!
- Seems the helium is working. A few minutes ago they were talking about intubation, now the doctor came in and said hes not sure he even needs to go to ICU. Hes awake and his breaths are much deeper Prayers are working! Wow this has been one of the scariest days of my life.
- Still struggling to breathe, cant seem to keep his 02 sats. They are going to try giving him helium with oxygen.
- Stable now. Requiring oxygen. Theyre admitting him to ICU.
- Tons of doctors rushing in worse than we thought pray pray pray
- Back at the hospital, pneumonia we're thinking.
- Up in the Air
- Trying Something New
- Ready for Mothers Day lunch.
- Enjoying the new kitchen :-)
- Cheese!
- Having a blast at Chuck E Cheese with school mates!
- Prayers are working!
- Bounce house!!!
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Marcela hola!!!
que lindas fotos de las vacaciones se ven lindos,me encantó verte con tu linda panza!!!
y las fotos de navidad están super,Nathan con su carita de sorpresa abriendo sus regalos que lindo y ver a tus familiares compartiendo con uds. pero lejos la mejor es verte con” Owen tán enamorados”
esa me encantó!!!!
Un beso.
Glad to see you have taken some time off to spend with your family. That is such a long time that you have been away from home.
Hope you have a great vacation, you deserve it.
Como disfrutaron esta navidad, mi niñito feliz con sus regalitos, estoy contenta de verlos felices y tu estás muy linda Marcela….. y el vestido nuevo?, les mando un abrazo amiga,
Besos