When you realize there’s not much the medical community can do for you, there’s one kind a doctor I really like – one that will help us out.
Today I took Nathan to see a neurologist. I was honest and told the doctor the only reason I was there was that I needed lots of prescriptions. We talked for a little bit, he carried Nathan, who subsequently spit up all over him, and then asked me exactly what I wanted.
I said, I need a wheelchair, a stander, a gait trainer, a vital stim machine, and a feeding chair.
He wrote them all out, handed them to me, and told me to come back in 3 months.
My first words out of the office were – SCORE! I love that kind of doctor 🙂
Now I can start the process of getting him all that stuff. I’ve found the stuff I want:
– Wheelchair: http://www.thomashilfen.de/easys/index_english.htm
– Stander: http://www.standingdani.com/kidsterdani.shtm
– Feeding chair: http://www.adaptivemall.com/sptososi.html
– Vital Stim: http://www.vitalstimtherapy.com/aboutvs.asp?section=patient&topic=whatisvs
Hopefully I can get CCS or insurance or someone to fund all this stuff. We’ll see!
As for today’s REACH program – same old same old. We only did 2 sessions and Nate complained the first one, screamed the second one. But we will forge onwards as I really believe this program is going to make a HUGE difference for him!
Here’s a video of him on the incline plane today:
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