I think it’s that time for me to ask: what kinds of topics would you like me to write about? Lately I’ve been more chatty and haven’t done too many informational posts. I would be very grateful if you gave me some feedback about the sorts of things you enjoy reading about in this blog! Thanks so very much!
Life with holoprosencephaly
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- Miracles
- Early Expiration Date
- Back to Blogging
- Time to get back in shape. Oh how I missed this, its been months!
- Good morning. Look who's feeling much much better :-)
- Feeling better!!
- At icu now. Doctors trying to figure out why Nathans having these problems. He is awake and watching spider man. Every time we take off the oxygen he desats, so still have a ways to go. Thanks for your prayers!!!! Theyre definitely helping!
- Seems the helium is working. A few minutes ago they were talking about intubation, now the doctor came in and said hes not sure he even needs to go to ICU. Hes awake and his breaths are much deeper Prayers are working! Wow this has been one of the scariest days of my life.
- Still struggling to breathe, cant seem to keep his 02 sats. They are going to try giving him helium with oxygen.
- Stable now. Requiring oxygen. Theyre admitting him to ICU.
- Tons of doctors rushing in worse than we thought pray pray pray
- Back at the hospital, pneumonia we're thinking.
- Up in the Air
- Trying Something New
- Ready for Mothers Day lunch.
- Enjoying the new kitchen :-)
- Cheese!
- Having a blast at Chuck E Cheese with school mates!
- Prayers are working!
- Bounce house!!!
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i LIKE to read all of the ‘chatty’ things that you blog about.
I also like to hear all of the tiny steps forward that nathan is making.
I like details of his ‘inchstones’.
And I just love that you share such a large part of yourself with US! I am honored to be your friend.
Hey Marcela,
You might remember me. I’d love to meet you and your family. Apart from Nathan, you’ve got a new baby right? Well, I think your kids are nearly the same age as my two daughters (9 weeks and 4 years).
Let me know when my wife, two daughters and me can visit.
Un abrazo,
Andre
P.S. I still go to KMC, but for now it’s just GP cuz I’m busy helping my wife with the kids.
Thanks for the feedback Whit!!!I’ll keep that in mind as I plan future posts! You’re awesome! We love you and Suzy!!!
creo que para mí ha sido de mucho interés toda esta linda y diversa historia del blog de Nathan,pero debo decir que es muy emocionante seguir sus logros y avances de medek,y saber como tú percibes esta nueva inyección de energia, pero ya sabes que estaremos muy atentos a todos tus post.un abrazo…(y la apretadita de mano para Nathan de Catita)