Last night was Nathan’s first time sleeping through the night.
Definite inchstone!
I was su surprised I kept checking on him every 30 minutes to make sure he was still breathing.
We hope it will happen again 🙂
Life with holoprosencephaly
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- Miracles
- Early Expiration Date
- Back to Blogging
- Time to get back in shape. Oh how I missed this, its been months!
- Good morning. Look who's feeling much much better :-)
- Feeling better!!
- At icu now. Doctors trying to figure out why Nathans having these problems. He is awake and watching spider man. Every time we take off the oxygen he desats, so still have a ways to go. Thanks for your prayers!!!! Theyre definitely helping!
- Seems the helium is working. A few minutes ago they were talking about intubation, now the doctor came in and said hes not sure he even needs to go to ICU. Hes awake and his breaths are much deeper Prayers are working! Wow this has been one of the scariest days of my life.
- Still struggling to breathe, cant seem to keep his 02 sats. They are going to try giving him helium with oxygen.
- Stable now. Requiring oxygen. Theyre admitting him to ICU.
- Tons of doctors rushing in worse than we thought pray pray pray
- Back at the hospital, pneumonia we're thinking.
- Up in the Air
- Trying Something New
- Ready for Mothers Day lunch.
- Enjoying the new kitchen :-)
- Cheese!
- Having a blast at Chuck E Cheese with school mates!
- Prayers are working!
- Bounce house!!!
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CONGRATULATIONS!!!! Isn’t the feeling great??? Yay Nathan!
i stumbled onto this site doing general research on something i saw on TV. andi am so glad i did! i have to admit i was nosey and fumbled through all your pictures..and what a lovely family you have!! and i am so glad to hear that HE is sleeping through the night.. that really is a NICE step they do. take FULL advantage of it..sleep is a privilege we lose , but well worth it i think! i am so sorry to hear about your family member in the hospital.. i will keep your family in my prayers. your lil one seems to smile in all the pictures.. seems to really love his mommy and daddy and is having a great time exploring his world. i am so glad that there are parents out there that get a “diagnosis” with their child, and do not see it as a death sentence. i will surely enjoy watching him grow , can’t wait to see what he is for halloween! oh, and that lil chair he is sitting in in his elmo costume.. where did you get it?? i am in a VERY small town in rural Ohio, and i have not seen one.. i wanna order one for my next lil one due in november..thanks for letting the world into your lives!!
Congratulations, I hope it becomes a habit (and not the part about you checking on him q 30 min.!
Kisses to the boy,
Helen