G-tube, Hips, and the rest

We had an appointment today with a surgeon. Nathan’s G-tube surgery is scheduled for August 27th.

It was a tough decision, and one we’ve been postponing for a long time. But the time has come. Nathan weights 30 lbs. He’s now 6. That’s just not acceptable. He lost his desire to eat. Every meal is a struggle. It’s hard to keep him hydrated. So we decided to make the tough decision, the one that will bring the most benefit to Nathan.

Tomorrow we go in for a Ph probe to see if he has reflux. The results will help determine if he needs a Nissen Fundoplication or not. Then surgery 10 days from now.

Hip surgery will happen soon after that. It was originally scheduled for September 21st, but he needs time to recover from the G-tube, so we will push that back to mid October.

It makes me sad to have to put Nathan through all these surgeries. When he was younger I thought that if I worked hard enough I could keep him from all these surgical procedures. But as he’s gotten older I find that it’s like swimming against the current and eventually you just can’t win, you’re always against the current. So we’re letting go.

Other than these upcoming surgeries, Nathan’s had a great summer. We spent 2 weeks at the beach with family and he had a blast. He is happy, spending a lot of time playing with his brother and sister, getting better and better with the Dynavox. He is still a very happy boy.

I’m back to work full-time so I don’t have as much time as I used to. I miss writing on the blog and being more available. But life is a series of ebbs and flows, and all is good.

Thanks for your support, I’ll keep you posted!