I found this on Brextin’s blog:
Oh how I wish I’d had this when Nathan as smaller! I think now he’s too big for it, bummer. But I wanted to share it here because it’s SO COOL!
Life with holoprosencephaly
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- At icu now. Doctors trying to figure out why Nathans having these problems. He is awake and watching spider man. Every time we take off the oxygen he desats, so still have a ways to go. Thanks for your prayers!!!! Theyre definitely helping!
- Seems the helium is working. A few minutes ago they were talking about intubation, now the doctor came in and said hes not sure he even needs to go to ICU. Hes awake and his breaths are much deeper Prayers are working! Wow this has been one of the scariest days of my life.
- Still struggling to breathe, cant seem to keep his 02 sats. They are going to try giving him helium with oxygen.
- Stable now. Requiring oxygen. Theyre admitting him to ICU.
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Oh my goodness, I’m so glad you posted this. It IS so cool! It might be a bit small, but I think I might get it and see if it will work for Chloe. It is such a great idea!!!
You can find them at http://www.avababys.com for just $27.50! They really are the neatest things.
NOTE from Marcela: I don’t usually allow people to post links to promotional sites, but in this case, she really does have a lot of cute stuff so I’ll allow it.