Missing my boy…enjoying my girl…
Life with holoprosencephaly
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- Miracles
- Early Expiration Date
- Back to Blogging
- Time to get back in shape. Oh how I missed this, its been months!
- Good morning. Look who's feeling much much better :-)
- Feeling better!!
- At icu now. Doctors trying to figure out why Nathans having these problems. He is awake and watching spider man. Every time we take off the oxygen he desats, so still have a ways to go. Thanks for your prayers!!!! Theyre definitely helping!
- Seems the helium is working. A few minutes ago they were talking about intubation, now the doctor came in and said hes not sure he even needs to go to ICU. Hes awake and his breaths are much deeper Prayers are working! Wow this has been one of the scariest days of my life.
- Still struggling to breathe, cant seem to keep his 02 sats. They are going to try giving him helium with oxygen.
- Stable now. Requiring oxygen. Theyre admitting him to ICU.
- Tons of doctors rushing in worse than we thought pray pray pray
- Back at the hospital, pneumonia we're thinking.
- Up in the Air
- Trying Something New
- Ready for Mothers Day lunch.
- Enjoying the new kitchen :-)
- Cheese!
- Having a blast at Chuck E Cheese with school mates!
- Prayers are working!
- Bounce house!!!
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She is sooo yummy…what a little doll! They looks so cute together Marcela! I am so happy for you guys! It is great you captured her first smiley laugh!
marcela, you make such cute babies!!
i have a very serious question for you, though… did your mom put those girly girl bows on you all the time, and if so… how’d you turn out to be such a tomboy? 😉
Cute and yummy. I would give Belle one kiss therapy immediately. 🙂
Cute, cute, cute! Oh, and Belle and Nathan look SOOOO much alike 🙂
Que linda foto de Nathan y Belle!!!
Belle esta tán gordita y muy linda,és tán despierta con casà dos meses,y muy coqueta en la foto con su manito tocando su carita,el video con su bisabuela demuestra lo despierta e inteligente que és me encanta!!!
Un beso gigante Belle!!
OMG! Seriously? Has it been that long since we met up? She’s beautiful! I hope all is well and give shoot me a line sometime so we can get together!
Espectaculares la fotos amiga, mi niñito y la princesita estan bellisimos y se ven muy lindos juntos, y Belle esta encantadora, no creo que se rÃa!!!!, increible, esta muy despierta e inteligente, y el parecido con su bisabuelita es muy grande!!!!!, amiga te felicito por tus dos hermosuras de hijos, a ellos les mando un besito y Vicente también se los manda y para ti Marce te mando un gran abrazo. (te estuve llamando hoy??)
I love your blog and how you weave your words to make lovely poetry. And your babies look lovely. I have a little girl 4 1/2 year old who has mild CP and I would have loved to have discovered this site before. As it is, I had to do all this research….. and Medek works great. Got my girl walking….