Life with holoprosencephaly
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- Miracles
- Early Expiration Date
- Back to Blogging
- Time to get back in shape. Oh how I missed this, its been months!
- Good morning. Look who's feeling much much better :-)
- Feeling better!!
- At icu now. Doctors trying to figure out why Nathans having these problems. He is awake and watching spider man. Every time we take off the oxygen he desats, so still have a ways to go. Thanks for your prayers!!!! Theyre definitely helping!
- Seems the helium is working. A few minutes ago they were talking about intubation, now the doctor came in and said hes not sure he even needs to go to ICU. Hes awake and his breaths are much deeper Prayers are working! Wow this has been one of the scariest days of my life.
- Still struggling to breathe, cant seem to keep his 02 sats. They are going to try giving him helium with oxygen.
- Stable now. Requiring oxygen. Theyre admitting him to ICU.
- Tons of doctors rushing in worse than we thought pray pray pray
- Back at the hospital, pneumonia we're thinking.
- Up in the Air
- Trying Something New
- Ready for Mothers Day lunch.
- Enjoying the new kitchen :-)
- Cheese!
- Having a blast at Chuck E Cheese with school mates!
- Prayers are working!
- Bounce house!!!
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I had a feeling that I would be seeing some version of this type of post soon… congrats, mama!!
Congrats!
oh my goodness, are you pregnant? If so, Congrats! That is so exciting!
yay Marcela!!!! Felicidades!!!!
Congratulations!!!!!!
I had a feeling that was what you meant yesterday on facebook!!!
Oh I am so excited I love you
OH MY GOSH!! Felicidades! 🙂
What wonderful wordless news! Nathan’s going to be a big brother… HURRAY! Congratulations!
I am glad you took 5 tests because 1 is only 99% accurate! I am so excited for you guys and Nate will finally get his baby sister!
We just found out!! CONGRATS, GIRL!!! And Owen too. 😉 Yay for Nathan being a big brother! 🙂 When are you due? It’s been too long! When you can call or email me! let’s catch up!
xo,
Shey