Life with holoprosencephaly
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- Miracles
- Early Expiration Date
- Back to Blogging
- Time to get back in shape. Oh how I missed this, its been months!
- Good morning. Look who's feeling much much better :-)
- Feeling better!!
- At icu now. Doctors trying to figure out why Nathans having these problems. He is awake and watching spider man. Every time we take off the oxygen he desats, so still have a ways to go. Thanks for your prayers!!!! Theyre definitely helping!
- Seems the helium is working. A few minutes ago they were talking about intubation, now the doctor came in and said hes not sure he even needs to go to ICU. Hes awake and his breaths are much deeper Prayers are working! Wow this has been one of the scariest days of my life.
- Still struggling to breathe, cant seem to keep his 02 sats. They are going to try giving him helium with oxygen.
- Stable now. Requiring oxygen. Theyre admitting him to ICU.
- Tons of doctors rushing in worse than we thought pray pray pray
- Back at the hospital, pneumonia we're thinking.
- Up in the Air
- Trying Something New
- Ready for Mothers Day lunch.
- Enjoying the new kitchen :-)
- Cheese!
- Having a blast at Chuck E Cheese with school mates!
- Prayers are working!
- Bounce house!!!
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I love it!
and we love you just because
You have one STRONG back!!!!
They will keep you in shape! They are sooo gorgeous I just want to pinch those cheeks! Loved that age…enjoy! It goes by so quick 😉
Que lindas fotos!!!
En la primera se nota la”fuerza del amor”
Nathan y Belle están muy lindos y son unos niños muy tiernos!!
Un beso de Catalina para sus amiguitos!!
Un abrazo.
wow! look how strong the sprout is!!
Marcela
Como estan tanto tiempo esta hermosa Belle y grande,espero que Nathan este muy bien ,nosotros bien esperando un nuevo integrante de la familia ,el Osvaldo ha pasado hospitalizado este invierno,ha sido tan frio y duro les dejo un beso y un gran abrazo Felicidades por su hermosa familia y para ti que eres una gran mamá………
Que grandes està n los niños, y muy lindos. Marce, vas a tener unos grandes musculos, pero me imagino es lo mas hermoso que hay teniendo en brazos a tus dos bendiciones, les mando un gran besito de parte de vicente y nuestra, y un gran abrazo a los papás, tqm,