Life with holoprosencephaly
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- Miracles
- Early Expiration Date
- Back to Blogging
- Time to get back in shape. Oh how I missed this, its been months!
- Good morning. Look who's feeling much much better :-)
- Feeling better!!
- At icu now. Doctors trying to figure out why Nathans having these problems. He is awake and watching spider man. Every time we take off the oxygen he desats, so still have a ways to go. Thanks for your prayers!!!! Theyre definitely helping!
- Seems the helium is working. A few minutes ago they were talking about intubation, now the doctor came in and said hes not sure he even needs to go to ICU. Hes awake and his breaths are much deeper Prayers are working! Wow this has been one of the scariest days of my life.
- Still struggling to breathe, cant seem to keep his 02 sats. They are going to try giving him helium with oxygen.
- Stable now. Requiring oxygen. Theyre admitting him to ICU.
- Tons of doctors rushing in worse than we thought pray pray pray
- Back at the hospital, pneumonia we're thinking.
- Up in the Air
- Trying Something New
- Ready for Mothers Day lunch.
- Enjoying the new kitchen :-)
- Cheese!
- Having a blast at Chuck E Cheese with school mates!
- Prayers are working!
- Bounce house!!!
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Oh no watch out :))) Lock the bottom cabinets and get the gates out! I was an early walker and it looks like she is going to take off! Thats wonderful and so exciting for you all! I remember the first day Ryan pulled up to stand he just started walking. I have it on film! I could not believe it!
No way!!! How is she getting so big so fast. Great pic.
Laura G
En cada foto me sorprende Belle, es muy inteligente y se ve muy linda, ahora solo le falta la foto arriba de lucas y hacer un caballito!!!!, te felicito amiga por tus dos grandes hijos, un abrazo
poor lucas!! that stricken face of his!!