Low heart rate – ideas?

Nathan’s heart rate is hovering in the mid 50’s and low 60’s (during sleep). I’ve never seen his heart rate below 80. They still don’t know what is wrong with him. He is still vomiting and still can’t hold anything down. We still have no diagnosis.

Any ideas about what could be going on? Tests that they could do?

Thanks for your help!


  1. Contact nancy clegg at hpe center she is on facebook too see if she knows why or suggestions

  2. Have they checked his sodium levels, Ryland was Very sick when we found out he had DI, doctor coudn’t figure it out, it wasn’t till I called Nancy Clegg that she told me to see were is levels are. Also some kids with HPE run at a higher level, like Ryland levels do better at 148-152, When he went to the hospital it was 168 they got it to 132 were kids his age a usally at and he started to have seizures, so after talking to other HPE parents we had them bring it up and then he went from being Really sick to just fine.
    Also for the heart thing he doesn’t have infection they are detecting, Nick’s little cousin was sick when she was little and it was something with the heart, can’t remember all the details
    HoPE you can find a answer. PRAYERS

  3. Hi Angel, thanks for the idea.

    Summer – his sodium is perfectly average. I just don’t know what else to look into.

  4. Marcella

    Have they preformed a chest X-ray to check for pneumonia? Tapped his shunt to rule out infection there? Checked for intestional blockage or the sort? This next ? may seem stupid to some, especially the Docs, BUT have they tested Nathan for RSV? I know of 2 kiddos over the age of 4 who have tested positive for RSV and 1 adult! The majority of the Docs don’t believe that kids Nathan’s age get RSV, but if they are around kids of the age who can get it, they have a better chance of getting RSV.

    As far as the low heart rate, Timmy has a low heart rate ALL of th time when he is sleeping. He has had an echocardiogram to rule out any defects. None were found. You could suggest that Nathan have an EKG and an Echocardiogram. It is possible that his low hart rate is due to him being sick and (not now possibly) dehydrated. Dehydration can cause low heart rate.

    Hope this helps.

    Thinking and Praying for you guys.

    HoPE that Nthan feels better soon


  5. Part of being sick? if he’s hydrated, breathing room air–maybe that’s all it is—what meds? or combinations? maybe he is just REALLY sleeping after two days of vomiting….

    how’s the mom gut? ‘gee this is weird for nathan’ or HOLY COW!! HIS HEART RATE ISTOO LOW?
    if it’s just weird for him right now-just….stay tuned in….it’s the first time he’s been this sick….
    praying here

  6. I wish I could provide advice or wisdom. All I can do is pray, so I will. Get better, Nathan!!!

  7. Have they considered checking for a shunt malfunction. Thats always my first thought when I hear vomiting and lethargy. Not sure about the heart rate. Cody gets a false low sometimes because his hands and feet are cold all the time. I assume they’ve manually checked it. Prayers coming your way!

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