If you read the earlier post, I talked about an idea of creating a card that we pass out to people wherever we go. I created a rough draft of the card. On one side, it will have this image:
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| From Collages |
On the other side, it will say:
Hi, my name is Nathan. I was born with a bad brain. Something happened while I was in my mom’s tummy so my brain doesn’t work right. I have a hard time getting my body to do what I want it to do. But I am just a little boy, who likes to watch TV, go to the park, eat chocolate, and hang out with friends. My favorite movies are Lilo & Stitch, and the Incredibles. My favorite characters are Stitch, Mickey Mouse and Tigger. I understand everything, I just can’t talk or walk (but I am trying very hard to learn). I know I look and act funny and different. But please don’t think I am; inside I am just the same. I am just another happy little boy. I hope I get a chance to get to know you and your family. It’s very nice to meet you.
If you want to read more about my life, visit my website: prayfornathan.org
I plan on printing them in nice photo paper so they look really nice. So – what do you guys think??!! Would love feedback!
Ok I want the 1st one lol. Then I want to make me one you know I have to be just like you lol. I love this you are so great that is why I love you.
what a great idea…
i’m going to pass this along to friends
…
i so enjoyed your pics…they’re beautiful shots!
Nathan is absolutely adorable and i know he is the light of your life!
I love the idea.
My husband and I love this idea! I have been a lurker on your blog and admire what you do for your son.We have been doing ABR for 4 years now and have seen much improvement in our 5 year old son. He has spqd cp and can not sit or walk yet…. however he is becomimg very vocal with some words, and is starting to comando crawl with his right arm!!! You are a fantastic Mom! I have a 4 year old son as well and I recommend you have another baby!! It would be the Best thing for Nathan and the both of you! Keep up the good work. I like the fact that you have cut back on trying so hard on fixing and enjoying!!! He will get better!!
This is a really, really good idea. I’m going to mention it on a post I’m putting up today! Just remember, you don’t owe anyone any explanations.
Hi Marcela~ I followed Ellen’s post to your site. I think it is a great idea.
I do agree with Ellen that you don’t owe anyone any explanations. For years, I thought I did. My son is now 6 (he had an intrauterine stroke and has multiple diagnosis).
I do think that people who may touch your child’s life in some form or another need to know certain things. That’s where I think these cards come in handy. It would also be great for the self-less, honestly curious and kind person who approaches you and asks questions. Those are the people who may care, are interested and would benefit from the card.
Great idea!
I like it… Perhaps for younger children, add, Would you like to play?
But I do love the idea, I think it’s great!
Hi Marcela
Love it love it love it!! You are the pure definition of Super Mommy!
Marcela,
Although I understand what Ellen is saying…that you (we) don’t owe anyone explanations…I still think this is a fabulous idea. Actually, I think this is a life changing idea. And the lives you change will be the people who learn from your cards. So many people are judgemental…misinformed…socially challenged when it comes to dealing with any type of disabled person. I think this is a small way to change the world…one card at a time. I know I’m sounding dramatic…but I believe in this idea. Even before I saw your draft…when you just wrote it as an idea…I envisioned you talking to Oprah, who was very moved by your passion to help people understand. How’s that? Now…want to know what I REALLY think? *wink*
I am sorry to hear of your horrible experiences with docs and ER’s and lawyers. Nathan is a beautiful boy!! I can honestly say…I have learned I don’t leave the hospital until I am sure they have given my son(s) what they need. I will do it by being rude, asking a million questions and generally being a nice witch. I am the warrior mom who is fighting with uneducated(even though they have more school than I) people who think they know it all. They do not know my children after looking at them for five minutes when I have known them since birth. You cannot assume you know what’s wrong with them when they can’t communicate to you what hurts. So until I get an answer not a bandaid we aren’t leaving. It has taken years to build up these skills and since now my youngest has severve CP due to lack of oxygen at birth and it could have been prevented I am even more of a warrior!!! Stay strong you have it in you to say I disagree I think you’re wrong, what else can we do? They might not like it but too bad it’s not about their egos it is about your child. Sorry to ranted but keep pushing find new doctors do what ever you can to ensure Nathan isn’t just a giant shunt in the room. Bless you and your family.