Yesterday we had our appointment at Shriner’s Hospital. It was the biggest dissappointment we’ve had in a long time.
Our appointment was at 11 am. They didn’t even call us in until 1pm. Nathan was hungry, we’d finally started feeding him when they called us in.
At about 1:30 the doctors walks in, makes me waste my breath giving her Nathan’s entire medical history, unless to say they can’t help him because he can’t sit up and is non-ambulatory.
Now, these people have Nathan’s medical records, I gave them his entire history. Why did they make us come in, waste our time, then reject Nathan? She claims they have limited resources and want to help kids that are near ambulation. Now I was told about Shriners’ from another parent whose child isn’t ambulatory!
It was just a very depressing experience. We missed 2 other appointments to take him there, and wasted most of the day. Not only that, but I hadn’t worked on getting him his DAFO’s or a wheelchair because I’d been told Shriner’s would help us get these items. So I also wasted 4 months, which is when the application process started.
Very frustrating.
At least now we know, so we’re starting a new type of journey to get him what he needs.
Just thought I’d give a heads up if other parents are trying to apply, find out BEFORE your appointment if they will even consider your child.
