A little piece of heaven

Things are still very much up in the air for us, in so many ways.  Nathan hasn’t been to school in close to 2 months.  After his nurse showed up at school and was told she was not allowed to be with him, we pulled him out and have been talking with our lawyer about how we can get Nathan back to school safely.  It’s heartbreaking as I know how much he loves it, and I know how much he wants to go back.   We are now in the legal process and waiting to hear how this whole thing will work out.  In the meantime, now that we’re past the worst of the surgery, I am going back to putting our story together and reaching out to the media.

His therapies are also up in the air.  Once the cast comes off, we have to start intense physical therapy so he can gain functional use again of the new range of motion that he gained with surgery.  I am so hopeful!  This was such a horrible experience, I do hope it’ll be worth it in the end.

Everything feels so unsettled now, between the school, still working on the house, his therapies.  In the meantime, he is starting to feel better.  When I look him in the eyes I see a sparkle.  He is back to himself.  As of today we’ve drastically reduced the dose of oxycodone and he seems to be feeling good.

I’m not sure I like blogging about just every day things, I’ll maybe try and create an editorial calendar and write about specific topics, see how that goes.

Sometime back I read a book called “The Artist’s Way” and it describes a method of writing 3 pages every day. The idea is to give your subconscious voice and to get used to writing daily.

I found a site called 750words.com that gives people a canvas to write those 3 pages, which comes out to be about 750 words.  I’ve been writing my 750 words every day and enjoying it.

So I thought – what if I then came and wrote a little bit here every day?  I’ve missed writing in this blog and would love to “bring it back to life”.   So I’ve decided to give it a try.

Yesterday Nathan finally acted like himself again.  He was happy, smiling, engaging.  He seemed so present.  After a little while the alarm when off for me to give him his oxycodone and I realized he seemed so content, why give it to him?  So I waited, and waited, and waited…He cried a little when it was time to go to bed, but he fell asleep and slept through the night.

So here we are, more than 12 hours since his last dose, and I think he may not need it any more!  How amazing would that be? We still have him on Motrin and Valium, but if we can scratch the heavy duty narcotic, that would be amazing.