A little piece of heaven

Life with holoprosencephaly

Sooo comfy and happy…at home!

April 30, 2013 by 2 Comments

Sooo comfy and happy...at home!

Filed Under: Uncategorized

Getting ready to be discharged! Going home in 2 hours. Hip hip hooray!

April 30, 2013 by 1 Comment

Getting ready to be discharged! Going home in 2 hours. Hip hip hooray!

Filed Under: Uncategorized

Day 5: Good morning. Thank you for praying for me. Im feeling much better! Im asking mommy for chocolate and french fries. I cant wait to go home to my daddy, brother and sister!!

April 30, 2013 by Leave a Comment

Day 5: Good morning. Thank you for praying for me. Im feeling much better! Im asking mommy for chocolate and french fries. I cant wait to go home to my daddy, brother and sister!!

Filed Under: Uncategorized
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Recent Posts

  • Miracles
  • Early Expiration Date
  • Back to Blogging
  • Time to get back in shape. Oh how I missed this, its been months!
  • Good morning. Look who's feeling much much better :-)
  • Feeling better!!
  • At icu now. Doctors trying to figure out why Nathans having these problems. He is awake and watching spider man. Every time we take off the oxygen he desats, so still have a ways to go. Thanks for your prayers!!!! Theyre definitely helping!
  • Seems the helium is working. A few minutes ago they were talking about intubation, now the doctor came in and said hes not sure he even needs to go to ICU. Hes awake and his breaths are much deeper Prayers are working! Wow this has been one of the scariest days of my life.
  • Still struggling to breathe, cant seem to keep his 02 sats. They are going to try giving him helium with oxygen.
  • Stable now. Requiring oxygen. Theyre admitting him to ICU.
  • Tons of doctors rushing in worse than we thought pray pray pray
  • Back at the hospital, pneumonia we're thinking.
  • Up in the Air
  • Trying Something New
  • Ready for Mothers Day lunch.
  • Enjoying the new kitchen :-)
  • Cheese!
  • Having a blast at Chuck E Cheese with school mates!
  • Prayers are working!
  • Bounce house!!!

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