With Cybell
At Disneyland
Lots of friends
What a lovely time we had.
Life with holoprosencephaly
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- Miracles
- Early Expiration Date
- Back to Blogging
- Time to get back in shape. Oh how I missed this, its been months!
- Good morning. Look who's feeling much much better :-)
- Feeling better!!
- At icu now. Doctors trying to figure out why Nathans having these problems. He is awake and watching spider man. Every time we take off the oxygen he desats, so still have a ways to go. Thanks for your prayers!!!! Theyre definitely helping!
- Seems the helium is working. A few minutes ago they were talking about intubation, now the doctor came in and said hes not sure he even needs to go to ICU. Hes awake and his breaths are much deeper Prayers are working! Wow this has been one of the scariest days of my life.
- Still struggling to breathe, cant seem to keep his 02 sats. They are going to try giving him helium with oxygen.
- Stable now. Requiring oxygen. Theyre admitting him to ICU.
- Tons of doctors rushing in worse than we thought pray pray pray
- Back at the hospital, pneumonia we're thinking.
- Up in the Air
- Trying Something New
- Ready for Mothers Day lunch.
- Enjoying the new kitchen :-)
- Cheese!
- Having a blast at Chuck E Cheese with school mates!
- Prayers are working!
- Bounce house!!!
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We had a great time with you guys!! Can’t wait to do it again:) Luv you all!
I was thinking of you the other day and wondered how you were. I went to see your blog and lo and behold another little one! I’m so happy for you. I’ve took some time off of SEO (about a year) and am now back into it. I miss you! Please call sometime if and when you are able! -Heather
Realmente fuerón unos dias muy lindos,les agradesco de corazón todas las atenciones que tuvierón con nosotras,especialmente Nathan y Belle!!!
están lindisimas las fotos,creo que nunca olvidaré este grán viaje por lo mucho que aprendí y por poder disfrutar de una familia tán linda como la tuya!!
Un abrazo para todos!!