Nathan got admitted to the hospital. We will be here at least until tomorrow. He’s had a really rough day. No definitive diagnosis yet. Thanks so much for all the prayers!
Life with holoprosencephaly
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- Time to get back in shape. Oh how I missed this, its been months!
- Good morning. Look who's feeling much much better :-)
- Feeling better!!
- At icu now. Doctors trying to figure out why Nathans having these problems. He is awake and watching spider man. Every time we take off the oxygen he desats, so still have a ways to go. Thanks for your prayers!!!! Theyre definitely helping!
- Seems the helium is working. A few minutes ago they were talking about intubation, now the doctor came in and said hes not sure he even needs to go to ICU. Hes awake and his breaths are much deeper Prayers are working! Wow this has been one of the scariest days of my life.
- Still struggling to breathe, cant seem to keep his 02 sats. They are going to try giving him helium with oxygen.
- Stable now. Requiring oxygen. Theyre admitting him to ICU.
- Tons of doctors rushing in worse than we thought pray pray pray
- Back at the hospital, pneumonia we're thinking.
- Up in the Air
- Trying Something New
- Ready for Mothers Day lunch.
- Enjoying the new kitchen :-)
- Cheese!
- Having a blast at Chuck E Cheese with school mates!
- Prayers are working!
- Bounce house!!!
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i’m so sorry.
poor sweet baby.
Please keep us posted, and I will keep praying for a quick recovery.
love you – Whit
Sorry to hear that Nathan had to be admitted to the hospital. Hope our Cutie Pie gets better very soon.
((((HUGS)))) and Prayers coming your way.
Donna
sorry to hear this mars, God Bless him he will get well soon
We got the reading of our 3.5 yr old sons MRI yesterday and it was NOT what we wanted to hear. I was in tears and Googled a ‘normal’ MRI brain so I could compair and I found your site. I read almost every post you’ve made from the start and it’s been SO helpful for me. We live in in CA also and have gone to some of the places you have for consults… God be with you as you move along on your journey. Hugs from Irvine. Deanna and Alex