Nathan continues to do well. He had his 6 month immunizations today so that made him a bit uncomfortable, but in general, he’s okay. We are pretty sure the problem was with the medication for GERD. So, so far so good.

Today someone said to me they felt really sorry for Nathan’s condition. It took me a second to understand why he would feel sorry. I guess that’s how far we’ve come.

When I got pregnant, Owen and I always talked about our “worst” fear being that our child wouldn’t be “intact”. Then when we got the diagnosis we just wanted him to live.

Now, it doesn’t matter what his skills or ability are, whether he develops typically or not at all. All that matters is his happiness. His peace.

I feel like the most fortunate person in the world to have Nathan. If someone asked me right now if I would take it all back I woudln’t. No way. I love my boy. He’s perfect just the way he is. He exudes so much beauty, so much joy. So much strength.

So our path may be different from a “typical” child’s path. But it’s so joyful, so powerful, so full of lessons.

So…I can understand how someone could feel sorry. But I guess it all depends on perspective.

I feel fortunate. It’s not because I have to and I’m just trying my best to deal. I genuinely feel so fortunate. With all my heart.

So. Last thing I do at appreciate my boy, appreciate his presence in my life. And first thing in the morning, with the first “Aguuuuu” and smile, I give thanks for another day with him.


  1. Oh, Marcela! You are so incredible. I *can* understand where someone would feel sorry for Nathan, but I believe they feel sorry, because they have no clue! I felt sorry at first, but that was when he wasn’t expected to live. Now I don’t feel sorry, because he is AMAZING!!! 🙂 I love hearing about his progress, and love seeing pictures of him doing all the things he does. He is God’s little miracle, and praise God he is alive! It’s amazing to see his improvements and the new things he is doing! 🙂 How are you guys? We haven’t talked or emailed in SO long! 🙂 The link to my blog is above… not sure if you have gotten around to checking it out. 🙂

    Hope to hear from you soon!


  2. I love reading your journal! I could sit here all day and read what you write! It is truly how I feel about my son Hayden. I feel that Hayden is my TROPHY! I am so proud of him!!
    Thank you!

Speak Your Mind