Today we had a moment of this. The rest of the day has been tears and intense pain. I had no idea this surgery would be this bad.
May 3, 2013 by 1 Comment
Life with holoprosencephaly
Archives
Categories
Search It!
Recent Posts
- Miracles
- Early Expiration Date
- Back to Blogging
- Time to get back in shape. Oh how I missed this, its been months!
- Good morning. Look who's feeling much much better :-)
- Feeling better!!
- At icu now. Doctors trying to figure out why Nathans having these problems. He is awake and watching spider man. Every time we take off the oxygen he desats, so still have a ways to go. Thanks for your prayers!!!! Theyre definitely helping!
- Seems the helium is working. A few minutes ago they were talking about intubation, now the doctor came in and said hes not sure he even needs to go to ICU. Hes awake and his breaths are much deeper Prayers are working! Wow this has been one of the scariest days of my life.
- Still struggling to breathe, cant seem to keep his 02 sats. They are going to try giving him helium with oxygen.
- Stable now. Requiring oxygen. Theyre admitting him to ICU.
- Tons of doctors rushing in worse than we thought pray pray pray
- Back at the hospital, pneumonia we're thinking.
- Up in the Air
- Trying Something New
- Ready for Mothers Day lunch.
- Enjoying the new kitchen :-)
- Cheese!
- Having a blast at Chuck E Cheese with school mates!
- Prayers are working!
- Bounce house!!!
Copyright © 2023 · News Child Theme on Genesis Framework · WordPress · Log in
Hi,
I just read I didn’t know the surgery would be this bad! Then I looked at the photo.
My son had the same surgery and we nearly lost him also to pneumonia. It was very scary and what we thought was a straight forward operation lead to a 18 mth recovery with lots of pain, tears and anxiety for both parents and child.
I am so grateful for your website and wished I had come across it earlier.
I have forwarded to other families with children with CP as we are all traveling a similar path. Thank you so much. Kindest regards Kristy mum of 12 yr old son with CP.