Tuesday, Sept 12th

Our appointment with the pediatrician today was a little bit discouraging. Nathan is still crying a lot, and it’s very hard to get him to calm down. He’s not sleeping much as he wakes up crying. There doesn’t seem to be much we can do to help him or calm him.

Dr. Feldman doesn’t know why he’s still crying inconsolably. She still thinks it might be the acid reflux, although the medication doesn’t seem to be helping him much. We are going to take him to the hospital to do a test to determine if it is acid reflux or not.

She’s also afraid the problem might be pressure from fluid in his brain. His head is growing too rapidly so she’s afraid that might be part of the problem, plus she thinks he might be developing hydrocephaly. He is going to have another ultrasound of his head so the doctor can determine what’s going on.

She did a physical on him and is also concerned about stiffness in his muscles. He pulls his head back a lot, which she says is due to incraesed muscle tone in his back. She reccommended physical therapy to help with the stiffness and so this doesn’t become more of a problem. She thinks he might have some cerebral palsy, but it’s hard to determine the extent.

As if all that’s not enough, she’s now concerned about his weight gain. He has gained too much too quickly. He is now weighin almost 13 pounds. He’s almost doubled his weight in 1 month. She thinks it might be because he’s not getting enough exercise due to the increased muscle tone.

Finally, she found a bit of a murmur in his heart. She wants us to have an electrocardiogram to check that.

So we are trying to stay positive. Doctor Feldman says many of these things we can work on. Physical therapy will do a lot to help him with the stifness and increased muscle tone. As for the rest, once she has the results of the tests, she will see what she can do for him.

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