I talked to Owen a little while ago and he said they had another fabulous day. 2 dives, 3 hours of suit therapy, and a whopping GFCF meal at PF Chang’s. He said Nathan was really happy the whole day and he didn’t hear a peep of complaining out of his mouth. Everyone kept on commenting on how different Nathan is when he is with daddy than when he is with mommy. He’s a tough little guy with daddy, and a spoiled brat with mommy. Just the way I like it 🙂 So Nathan has now completed 10 HBOT dives at pressures ranging from 1.3 and 1.5 Now that Nathan is better I am hoping they will go up to 1.75. Good night everyone!
Life with holoprosencephaly
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- Miracles
- Early Expiration Date
- Back to Blogging
- Time to get back in shape. Oh how I missed this, its been months!
- Good morning. Look who's feeling much much better :-)
- Feeling better!!
- At icu now. Doctors trying to figure out why Nathans having these problems. He is awake and watching spider man. Every time we take off the oxygen he desats, so still have a ways to go. Thanks for your prayers!!!! Theyre definitely helping!
- Seems the helium is working. A few minutes ago they were talking about intubation, now the doctor came in and said hes not sure he even needs to go to ICU. Hes awake and his breaths are much deeper Prayers are working! Wow this has been one of the scariest days of my life.
- Still struggling to breathe, cant seem to keep his 02 sats. They are going to try giving him helium with oxygen.
- Stable now. Requiring oxygen. Theyre admitting him to ICU.
- Tons of doctors rushing in worse than we thought pray pray pray
- Back at the hospital, pneumonia we're thinking.
- Up in the Air
- Trying Something New
- Ready for Mothers Day lunch.
- Enjoying the new kitchen :-)
- Cheese!
- Having a blast at Chuck E Cheese with school mates!
- Prayers are working!
- Bounce house!!!
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Next time they go to PF Changs, mind if I come too?
That is EXACTLY how Fletcher is with Trevor and me!!
Glad things are going well.
Oh, and I was going to tell you about the cord blood, I just saw a piece on a study at medical college of georgia (using autologus cells, so it doesn’t pertain to us, but anyway) that is using exclusively blood stored at CBR. I don’t think it is necessarily proof that CBR is better than viacord, but something to consider, I guess.
Hola Marce, como estas?. Que bien que Nathan esta estupendo con su papá, y que todo ha sucedido bien, sin problemas. Nathan necesita mucho a su papá, tal vez estaba esperando que Owen lo llevara a la terapia y todo serĂa distinto. La verdad que con Vicente nos pasa lo mismo, cuando sale con el papá todo anda en orden y conmigo todo al revĂ©s!!!.
Como van las clases de cocina???, hay algo rico ya?. Me imagino que estas muy entusiasmada con las cosas de Belle, que bello te quedará todo para recibir a la princesita!!.
Te dejo un gran abrazo, y estoy muy feliz que mi niñito podrá terminar con toda la terapia. Vamos Nathan, lo vas a lograr!!!.