…being sick means you can’t have some fun?
Life with holoprosencephaly
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- Miracles
- Early Expiration Date
- Back to Blogging
- Time to get back in shape. Oh how I missed this, its been months!
- Good morning. Look who's feeling much much better :-)
- Feeling better!!
- At icu now. Doctors trying to figure out why Nathans having these problems. He is awake and watching spider man. Every time we take off the oxygen he desats, so still have a ways to go. Thanks for your prayers!!!! Theyre definitely helping!
- Seems the helium is working. A few minutes ago they were talking about intubation, now the doctor came in and said hes not sure he even needs to go to ICU. Hes awake and his breaths are much deeper Prayers are working! Wow this has been one of the scariest days of my life.
- Still struggling to breathe, cant seem to keep his 02 sats. They are going to try giving him helium with oxygen.
- Stable now. Requiring oxygen. Theyre admitting him to ICU.
- Tons of doctors rushing in worse than we thought pray pray pray
- Back at the hospital, pneumonia we're thinking.
- Up in the Air
- Trying Something New
- Ready for Mothers Day lunch.
- Enjoying the new kitchen :-)
- Cheese!
- Having a blast at Chuck E Cheese with school mates!
- Prayers are working!
- Bounce house!!!
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Hi there.. Hopefully Nathan will fully recover soon..
He’s sooo handsome!!
Actually I’m a mother to a holoprosencephaly baby too.. I found your blog through holoprosencephaly.net
It feels good to find someone of the same shoes.
=)
Nice meeting you..
I’ve always wanted to do that with Ryland, he loves going fast and loves having the windows rolled down as we drive. I know if he could go on a roller coaters he would have fun. The faster the better with him.lol He loves when we are out for walks and a motorcycle goes by be gets all excited.
HoPE Nathan is feeling better soon. Ryland wasn’t feeeling good but started on antibotices and was better within a couple days, he’s been doing pretty good with all the crap going around here.
I’ve always thought that laughter is the best medicine!!!!!