A little piece of heaven

I think this is so true!

:: Worry Less, Love More ::

Perhaps you’ve been led to believe that worrying
about children goes hand in hand with loving them.
But in truth, parental love is far more powerful
*without* worry than with it.

Worries focus all your attention on what you *don’t*
want and put you in a state of *fear*. This sends a
message to your child that you *expect* bad things
to happen. And since children naturally tend to meet
their parents’ unspoken expectations, worries are
self-fulfilling prophesies.

Today, if you catch yourself worrying, don’t worry
about it. 🙂

Instead, use your awareness of worry to shift your
focus in the direction of what you *do* want, and
reach for thoughts that soothe your worries:

“It’s not the end of the world.”
“It won’t last forever.”
“I’ve successfully handled worse situations.”
“We always find our way.”
…etc.

Before long you’ll start feeling hopeful, and you’ll
feel your heart opening, too. An open heart is all
you need for love to flow unconditionally…
unhindered by worries.

Source:

http://dailygroove.net/worry-less-love-more

And his reward…

And here he is, learning to communicate with his dynavox

While we work on getting the eye gaze, he is learning 2 switch scanning.

In the meantime, Belle zooms forward:

I am one proud momma.

Yes, the “crawling” isn’t pretty, he’s not really down on hands and knees. But he is MOVING. Do you guys know how long I’ve dreamed of seeing Nathan moving in any way, shape or form?

Once his brain understands that he can use his body to get where/what he wants, I think it will kindle his will which will then give him a motivation to work hard in therapy. Up until now he has never moved on his own. Now he can kick his feet and GO! I am sooo happy! And even if this doesn’t lead to anything … it’s SOMETHING he can do!!!

Part of me was thinking today…great, now we have to get his hands and knees on the floor…but NO. I am going to sit on my laurels and ENJOY this inchstone of Nathan’s! Good job Nathan, you are amazing!!!

And some more pics of Belle:

You would think that the hardest thing about having a child with cerebral palsy is their lack of mobility..or the fact they can’t speak or walk or move..or the fact that you have to carry them around everywhere…or the fact they require so much work – surgeries, appointments, therapies.

In my opinion, the hardest part of having a child with CP is none of the above. I feel that the hardest part is the decisions that you, as a parent, have to make.

Which therapy is best? Where? How much? What medicines? What doctors? What surgical procedures? What orthotic devices? Equipment? What to fight for? How to allocate your resources? What is priority? When?

And even worse than the actual decision is the repercussions of your decisions. Because what you decide for your child can have very life-altering circumstances. If I don’t do X for Nathan it may affect his physical structure. If I don’t do Y for Nathan he may miss his chance to learn to do X, Y, or Z. You get my drift. Especially when you are dealing with medical stuff, like seizure medicines, other medications, orthopedic interventions. It feels like a house of cards.

Do you struggle with making decisions for your child?