Life with holoprosencephaly
Nathan working with Tom, his rolfing therapist
Chubby chubby cheeks!
Greatgrandma is soo interesting!
I won’t smile…I won’t smile…I won’t smile…
Learning to play on his back by himself
I like this pillow…
But this one’s even better!
Hanging together
Sometimes you just need a hand.
Nathan is OFF his PREVACID! Hooray hooray hallelujah!
A while ago I talked about wanting to take Nathan off prevacid. So I added a couple of supplements, and told Owen to start giving him the prevacid every other day (he is the official prevacid doser).
Well Owen got mixed up and stopped giving it to him altogether.
Today I noticed the supply wasn’t dwindling so I asked Owen about it and the truth came out. And guess what. Nathan seems fine without his prevacid! He hasn’t been vomiting, he’s been eating better than ever, and he is still gaining weight.
It occurred to me that maybe this is the reason he’s been whining. But coincidentally this week he’s been much much better so whatever was bothering him seems to have passed. Thus it can’t be the lack of prevacid!
Nathan is fully off all pharmaceuticals! Hip Hip HOOOOOOOOOOORAYYYYYYYYYYYYYYYYYYYY!!!!!!!!!!!!!!!!!!!!
After I decided to stop blogging, I realized it was a huge mistake. Not only is this therapeutic for me and a great tool to keep my friends and family informed about our adventures. This blog has also led me to some of the best friendships and some very amazing, incredible people. I sat down to think about some of the people that have really made a difference in our lives in the past few years, and a large percentage of them we met through this blog, and for that I am so grateful!
Another reason for blogging…some of these aforementioned people have got my number! I got an email this morning regarding my post yesterday about Nathan’s MRI results. Another mommy who I totally trust gave me a good reality check. She said, yes, it may be harder to help a child with HPE improve. But with consistent hard work the child WILL improve over time. And this is 100% undeniable and I can only agree with her.
Being hard on myself for past mistakes is a waste of time. But realizing those mistakes, correcting them, and moving forward differently is the real test of character.
So today I pulled out the old CME exercise book and made the decision to get back to hard consistent work. I saw many of Nathan’s CME videos and was super motivated to get the ball rolling again with CME. I think this was the final missing piece of our puzzle. Once CME is in, I think the puzzle is complete.
Thanks to all of you guys who enrich our lives just by being in it!