Life with holoprosencephaly
Well we’ ve had a busy week. Nathan had swim class on Monday and Wednesday. It went great he really loves the water.
He also had his first vision therapy:
He also practiced in his stander:
He sat in the bumbo chair to strengthen his core muscles:
Ate a balloon:
Cousin Gabriel and the family:
4 generations:
With the entire family:
Cousin Katie:
Deserved relaxation:
We went to Vegas for a day and Nathan of course loved it. He was just amazed by all the people, the lights, the sounds. It was incredible to watch as he stared at everything with wonder and delight.
We stayed at one of the border hotels Friday night to minimize the driving, then went on to Vegas in the morning. We started off at the new Wynn casino, then made our way down to the Venetian for lunch, over to Caesar’s palace to hang out and nap, then the Mirage, then dinner back at the Wynn.
Wherever we went people had to say hi to him, and he was smiling left and right at everybody. He loved the slot machines but unfortunately as he is a minor we weren’t allowed near them (we did sneak a couple of photos hehe). But he did get to watch a little show at Caesar’s and to see the tiger at the Mirage and of course everything else. Owen and I loved all the waterfalls at the Wynn.
We have a ton of photos in the main photos section, but there are a few more here:
We finally got our stander in the mail today thanks to Amy Colletti 🙂
Of course in our excitement we put him in it right away. He seemed to like it! But only for a few seconds of couse, after a little while, he wasn’t thrilled to be in there.
Here are some pictures:
holoprosencephaly