Letting Go

Many of you who follow this blog have at one time or another commented or emailed me directly.  If so, you know I do my best to email back and reply to comments via email (I don’t like to reply to comments on the actual thread because I think people generally don’t come back to check the threads that they’ve commented on).  It is one of the greatest pleasures for me – connecting with others, helping when I can, being helped when I need it.  One of the aspects that I feel defines me is a strong, overwhelming desire to be of service to others.  I know sometimes I get a bit pushy in my desire to help but generally it comes from a good heart and a deep desire to see others well and happy.

“Letting go” seems to be a huge part of the life lesson that I have been learning, especially since Nathan chose to come into my life.  With every passing year I realize I cannot control things.  I have posted about this realization when I talk about not being able to fix Nathan, that I can only love and accept him, and offer him the best of myself.  And the outcome…is just not up to me.

Part of that feeling of “letting go” is realizing I can’t do everything I want to do.  I have so many dreams and ideas for helping others – I wish I could fully dedicate my life to service.  But my reality is quite different.

My life tends to be very busy and complicated.  There are many components to it:

I have to take care of Nathan physically, take him to therapies, set up and coordinate doctor’s appointments, set up and coordinate therapies, spend time researching new medical, alternative, and other treatments, look into equipment and coordinate getting equipment, put him to bed, bathe him, massage him, entertain him.  I spend time every day reading blogs, forums, medical articles, and books so I can learn more about the brain, the body, and what’s going on out there in search of ways to help Nathan.  It often feels like the “management” side of Nathan’s life alone is a full time job.  Fortunately I have help at home, but I still have to make sure everything at the house is taken care of, that there is healthy food in the fridge, that I have all of Nathan’s supplements available, and mostly supervising that things are being done properly at home.  Then there’s taking care of Belle, which at this point in time means getting a little bit of rest, taking all of my supplements and making sure I have them available, scheduling doctor’s appointments and making sure all of the doctor’s bills are current.  Finally, I have my own business.  I am an internet marketing consultant.  As you can imagine my business is much diminished from what it was at the time of Nathan’s birth, but even now managing 10 clients is a lot of work.  I have meetings with clients, reports, projects, accounting, dealing with problems, staying on top of the industry and making sure I am providing them with a valuable service.  I obviously need to keep my clients happy because I need the income.  And I’m always keeping an eye on things and starting side projects in hopes that things will take off as taking care of Nathan is immensely expensive!  And now of course there’s Belle to think about too.

I do my best to stay on top of everything and maintaining my sanity…but sometimes it’s just too much.  And now, as I enter my 3rd trimester, I find that I really need to slow down a little.  I want to rest more and enjoy this time I have with Belle inside me.  I’ve started a journal with letters to Belle that I plan to give her when she is older.  I want more time for those aspects of life and motherhood – dreaming, resting, enjoying.

Consequently, I realize that I cannot do everything.  So I’ve decided that, for the time being, I cannot answer all emails and comments, as I normally enjoying doing.  I will continue reading blogging, reading your comments, and praying for everyone, as I always do.  But I may not be able to write back or get in touch with everyone.

I hope you continue to come by and read about Nathan.  I hope you continue to email and leave comments.  I hope you understand why I cannot respond to everything.  But know that all of you guys are in my heart and prayers and that I will always have a wish to be of service to you, if not now, then in the future.

And now I’m going to take advantage of the fact that Nathan is napping so I can eat some lunch and maybe even take a nap myself (!!).

With much love,
Marcela.

A very special interview

Today we are going to have a very special interview…with Mr. Nathan himself! Even though Nathan cannot speak with words, he speaks with his eyes and body and actions and sounds and with his very soul.

As he is asleep right now we will just have to imagine he is sitting right here, and answering these questions in his own special ways. So on with the interview:

What is your favorite thing to do?

I like to watch TV!  I also like going out with my dad.  I like seeing my friends and my cousins and going to the park.  I also like reading books.  I like playing with Tita (my grandma) and I like it when my mom gives me a bath and a massage.  Oh and I love swimming in the pool.  But if I had to pick just one thing – I’d watch TV all day!

Do you like school?

I love going to school!  The bus is fun and I like it when we do music and circle time.

What do you like to eat?

Hmmm…. eating is my other favorite thing to do.  I like to eat all day.  My favorite foods are chocolate, ice cream, and soy chai latte – but mommy doesn’t let me have these.  I like eating pancakes and sweet potatoes and pasta, I LOOVE pasta.

Are there any foods you DON’T like?

Yeah.  I don’t like salads.  And sometimes I don’t like plain vegetable soups.  But I like almost everything.

How tall are you?

3 feet tall!

How much do you weight?

26 lbs

How old are you?

3.5 years old

What is your favorite animal?

I like dogs and I like horses.

What places have you visited?

Hmm…mommy and daddy take me everywhere!  I have been to France, Thailand, Singapore, England, Colombia, Mexico, Chile, Dominican Republic, Argentina, and Canada.  In the USA I have been to Tampa, New York, Portland, Dallas, San Francisco, North Carolina, Austin, San Diego, Santa Barbara, Las Vegas, New Jersey, Washington DC.  Travelling is fun!

What do you like to play with?

Mostly books.  I like turning pages.  I also like playing with cars, especially remote control ones.  I like making music and playing the maracas.

Do you have a favorite toy?

Right now my tonka remote control car that my friend Cate gave me!

Who’s your favorite person?

My mommy!  Then my daddy.  Then my grandma Tita.

What kind of music do you like to listen to?

Techno with daddy, classical with mommy.

What is your least favorite thing to do?

Spending time on my belly on the floor.  Yuck.  I cry until they pick me up.

What’s your favorite TV show?

Mickey Mouse.  Then Tigger and Pooh.  Then Pinky Dinky Doo.  Then Sesame Street.

What’s your favorite movie?

Cars and Kung Fu Panda

What do you think of Lucas and Lola?

They like to lick me and they have big tongues!

And of Belle?

Who’s that?

Any parting words?

Mommy can I please have some ice cream?

Back on track

Today has been a wonderful day.

This morning I forgot Nathan’s wheelchair in my car at the mechanics, so when the bus came to pick him up, he couldn’t get on. He gave us a big lip and almost cried! He’s really loving the bus ride, and fortunately they agreed to pick him up last and rop him up first, so he’s only in the bus for 15 min’s max. He’s such a boy now! He’s starting to love cars and buses and little boy toys!

Afterwards, I pulled him out of school early and we went to see Dr. Kenny. He is in GREAT shape! His vital energy was at 996/1000 – meaning – he’s in great physical and emotional health! His vitamin protocol is about the same: B6, quantum brain complex, multi-pollen extract, omega 3 oil, eye q (oil), vitamin D, vitamin E, 5htp, Advanced brain nutrients, cyrofood, quantum nerve complex, neuroplex, nux vomica, phospholipids, and bulgarragus (probiotic). She tested him for the G-therapy and advised us to give him a 2 week rest period from the G. While we waited ad Dr. Kenny’s, he was standing against a chair, bearing weight, holding up his head, and turning the pages of the book. By the time I decided to film he’d been at it for a while and was tired, bu you can still get the idea:

Afterwards we went straight to his 2nd appointment with his new Anat Baniel Method therapist. It went FANTASTIC. This is such a subtle therapy that I can’t really describe how it works or what kind of effects it is having. All I know is that it “feels” right to me – my mommy gut is yelling YES YES YES! The therapist is only 20 minutes away so this therapy is completely SUSTAINABLE for us – this is my new favorite word 🙂 Our therapy plan/schedule is finally starting to fall into place – more on that tomorrow.

In the meantime, here are a couple of videos of Nathan in his ABM session:

How can so much cuteness fit into one little package??!!