What it takes

My mom sent me this by email, and I thought I should share it here, as I think it’s great advice for everyone I know!

What it takes

Don’t let the difficulties get you down. Let them get you going.
Seize each opportunity to grow stronger and more purposeful. Discover again and again how good it feels to be confident and effective.
The challenges may indeed be great. With your dynamic resourcefulness, your creativity, your focus and persistence, you are greater than any challenge.
You can make a difference now. You can keep doing so for as long as necessary, until your goal is reached.
Feel the unshakable confidence that comes from successfully navigating through a difficult situation. Feel the satisfaction of knowing that you’ve lifted the world higher through your efforts.
You have what it takes to do what you must. This is your moment to truly shine.

And another one:

Just because you seem to be at a disadvantage is no reason to give up. Instead, resolve to push forward with consistent, focused effort.
Those who achieve are not necessarily the smartest, or the wealthiest, or the best connected. Those who achieve are those who are the most persistent.
Your level of commitment over the long term is a much bigger factor than any relative advantages or disadvantages that may exist when you first start. Choose where you would like to go, and keep making the effort until you get there.
Be willing to do what it takes, and you can achieve whatever you wish. Instead of worrying about where you are when you begin, put your energy into making steady progress.
If you can take one step and then another, you’ll get where you choose to go. So take the first step right now, and then begin working on the next one.
You owe it to yourself to live life at its best. Now is your opportunity to make that life happen.

We’re back in the game!

Today Nathan and I had a wonderful day. I had a terrible night with fevers and vomiting and thought we were in for a rough day – especially when Denise, the nanny, didn’t come to work. It turned out to be the opposite.

After all of the wonderful support and advice, I felt happier and calmer. Maybe Nathan perceived this? He woke up happy and in a great mood. He did REALLY well in both of his CME sessions and is back on track! Both Ramon and I felt that today was the first day since he got sick that Nathan was back on track and happily working hard. I don’t have a care in the world when I see my son happy and working hard in his therapy. It was almost like he knew I was having a rough time, and he wanted to let me know that I shouldn’t doubt him, that I should have faith in him. If he could speak he would probably say, “Mommy, don’t give up on me!”. Baby, I hear you loud and clear.

I leave you with videos of his sessions today:

Nathan, I am so proud of you!

Head Control

This is something that I worry about with Nathan. Ramon tells me not to worry – it will come, he says – but worry I do.

I was searching around the web and found these articles:

Music as a feedback mechanism for teaching head control to severely handicapped children: a pilot study.

Sensory feedback for head control in cerebral palsy.

Training of head control in the sitting and semi-prone positions.

I am really intrigued by these ideas! Basically if I can set some switches up on his wheelchair, so if he keeps his head properly aligned he gets a reward – for example, music – but if he lets it fall, he receives negative feedback – this might help him develop better head control!

I’ve been doing something similar lately. I sit him up completely straight in his wheelchair. He likes to lean forward so his head is not held but the wheelchair rests. But then as soon as he leans forward, he lets his head fall to the side – usually the left side. What I do is I will vibrate him back to midline. He will then drop his head again within 10 seconds, and I fix him again. So in a 10 min walk I will fix him at least 100 times. This is annoying to do but today I noticed that he kept his head aligned for about 5 – 10 seconds. So I think there is something to it!

Does anyone have any ideas about how to implement this? Does it even sound like a good idea? Am I completely mistaken that he can learn head control through biofeedback? Would really appreciate some feedback!!!