A little piece of heaven

A while ago I posted about responsibility. I wondered if it was possible for me and Owen to take care of Nathan on our own, or if we needed help from others. Now I know – NO WAY.

It takes a village.

So meet our new villager: The Lovely Maria.

From 1-13-09

Maria is Nathan’s new nurse. She will be helping us with his therapies, especially with the ABR.

She started last Friday and I can honestly say, today I feel better than I have in 2.5 years. It is so nice to have help!

She has already learned about all of his equipment, therapies, she’s watched the ABR tapes and started doing ABR with him, she went to the doctor with me and helped me out while we waited…. it’s amazing! Everything doesn’t have to be a struggle!

Between the two of us we can actually take care of everything he needs, from all his therapies, to his oral motor exercises, to teaching him how to use the switches, to giving him all his vitamins and supplements.

So now I can focus more on being his mommy and playing with him and hanging out with him, while Maria is his primary therapist! This also gives me a little bit of time to work, which I really need, and to take care of myself a bit better.

If you have been praying for us – your prayers sent us an angel!

Nathan had his first pajama party today!

He got together with his buddies and ate popcorn while watching Madagascar.

He was SO HAPPY. He just loves being around his friends. He watches them and laughs at their antics and giggles at every crazy thing they do. Well, today he mostly watched TV but he kept an eye out for his friends and laughed every so often at things they were doing.

Here are some pictures:

We feel so blessed to have such a lovely group of friends with such wonderful kids. All of them are just awesome and they all love Nathan and go up to him and hug him and kiss him and show him their toys.

Mr. Nathan is healthy now and enjoying being upright with his friends.

Hope everyone has a wonderful weekend!

…at the end of the tunnel.

Nathan is healthier. No more puke, no more diarrhea. A little snot, not so bad. He’s eating like crazy, happy, content.

I smell health looming over the horizon. Can it be?

And energy. For the last 2 days, I’ve had energy again. I feel balanced. I feel peaceful. Amazing, for someone who was daydreaming of a vacation in prison. Who would scheme for the least worst crime that could land me in prison for a few days so I could finally take a break.

Instead I feel good. Balanced. I’m on the road to health and for the first time I can believe I will actually arrive at my destination.

Everything that Dr. Dituro is treating me for is improving. The candida. Stress. Parasites. Adrenal & hormonal imbalances. It’s weird to know what it’s like to sit in quiet, peaceful meditation. How cool huh. And the mental clarity. I can think straight again! I can trouble shoot and problem solve. I can see clearly now! Incredible.

Clarity. I know what we need.

So today I sat down and wrote out everything I wanted to do in a day with Nathan. I had the time, clarity and energy to schedule it out. Trouble shoot. Organize.

And with this level of organization and clarity – I can do this! I know I can do this! And this feeling of hope and confidence..wow!

Here’s an example of what I worked out today:

Monday
7 am – wakes up
7 – 7:30 – stretches and massage
7:30 – 8 am – Beckman exercises / breakfast / ABR machine chest / switch
8 – 8:30 am – 5 masking /ABR machine solar plexus / mud packing
8:30 – 9:30 – PT/OT – with hart, lite, or kidwalk
9:30 – 9:45am – Beckman / snack
9:45 – 10:45 – ABR chest / ABR machine abdomen
10:45 – 11:45 – nap in hyperbaric chamber
12 – 1:30 – Vital Speech & Swallow (have lunch ready in his lunch bag)
1:30 – 2:30 – ABR neck
2:30 – 3:30 – AIAHP
3:30 – 4 – Beckman / snack
4 – 5 – ABR jaw / ABR machine abdomen
5 – 5:30 – 5 masking / ABR machine solar plexus
5:30 – 6 – Beckman / dinner / switch / ABR machine chest
6 – 6:30 – Communications session with toys and choices

I did this for every day of the week. No wonder I couldn’t do everything I wanted to do. There is physically, literally no time! And every night I’d go to bed guilty because I didn’t get it all done. No wonder. But now I know. Now I can.

Anyways. Light. I see light at the end of the tunnel.

And I look towards it with hope.