A little piece of heaven

We had friends over for dinner tonight and had a blast. It was supposed to be a house redecorating housewarming but..unfortunately…all the furniture isn’t here yet. We’re still missing 1/2 of the TV cabinet and all of the furniture for the TV room. But everything else is in and tomorrow I’ll post pictures of the rest of the house.

It’s our last shenanigan before….tadadada…Belle’s arrival THIS SATURDAY.

You heard me right. We’re going in for the c-section this Saturday morning (yes, that’s in 1 day).

One last hurrah before our life changes completely!!!!

I know some people think we’re crazy for doing all we do with Nathan. Some people think we’re chasing a dream and we should just accept reality and stop running around doing therapies. They think some of the stuff we do is nuts and why can’t we just follow convention.

The answer is so simple: Quality of Life.

I love Nathan exactly the way he is. I accept him. He is absolutely perfect. If he stays exactly the way he is for the rest of his life I will be blissfully happy with the incredible little person whose life I have the good fortune to share. Of course I have my human moments where I get down and want him to do more – but these are just moments.

As I have said many times before, my two primary goals for Nathan are Health and Happiness.

That is 80% of the reason we do what we do. The supplements we give him, the therapies we do, the activities and equipment we use – everything is meant to maintain his body in good health which prevents surgeries and illnesses which in turn keep him a happy, content little man.

In all honesty, I believe conventional medicine fails miserably at achieving this goal. Until I had Nathan, I was a 100% believer in conventional medicine. I never went to “alternative” doctors, I believed traditional doctors, I did what they told me to do, I took the prescriptions they gave me. But having seen how miserably conventional medicine failed Nathan, I was forced to seek alternative routes. Thereafter, it was simple.

Conventional – Nathan was sick all the time.
Alternative – Nathan became increasingly healthy and happy. He is rarely sick. He has not been hospitalized at all since we started with alternative treatments like muscle testing, chiropractic, nutritional supplements, and energy medicine.

Beyond simple. And since alternative medicine is so vast and unknown, it necessarily has to be a trial and error situation. How can we know what does or doesn’t work if we don’t try it? How do we know which ones are the good and the mediocre practitioners? So try we do. We try and we try and we try. And through trial and error we have found some fantastic treatments and healers.

But as you know and I openly share – nothing we’ve done has given Nathan any major functional gains. He is still not talking, not sitting, not holding up his head, not standing, not rolling, not not not. So why do we continue? Why do we keep trying and trying? Once again, it’s simple.

Quality of life. The other 20%.

Even the most minute of inchstones can make a huge difference to both Nathan’s quality of life and our quality of life as his family and support team.

Today I witnessed one of these inchstones. We’ve been working on “yes/no” responses using his 2 button switch talker. A few months ago, it was very hard for Nathan to use this switch because he didn’t have enough control of his hands to reach over to the furthest one. Also, he didn’t have enough precision to hit the button accurately.

Until today. Over lunch Nathan and I had one of our first “conversations”. Because of all the stuff we’ve done lately, he now has more control over his hand, and he gained the ability to flick his wrist so he can easily press either of the two buttons. He has so much more precision now and can do it consistently. So we started having a yes no conversation. It went something like this:

Nathan do you want more pasta? Yes. Do you want some water? No. More pasta? Yes. Did you have fun at school today? Yes. Do you want more medicine? No. Would you like to eat more pasta? Yes. How about water, would you like some? No. Would you like me to call daddy so he can say hi? Yes. Do you love your sister Belle? Yes. Are you ready for nite nite? No.

I kept changing the questions to see if he was hitting the buttons purposefully and he was 100% purposeful and very accurate. This conversation brought tears to my eyes! I can now “talk” to my son and he can express, clearly and consistently, what he wants! This is INCREDIBLE!

Can you put a price tag on that? Can you put an effort tag on that? Can you call me crazy for being willing to go to the ends of the earth to help Nathan gain these inchstones that mean so much to him and to us?

I love him just the way he is. But now I can also ask him what he wants/needs. Now we can have conversations. Now I can understand him better. Now I can take better care of him.

Every little inchstone goes a LONG way in improving Nathan’s, and our family’s, quality of life. Every drop of strength, every drop of control over his body, every muscle he masters, every reflex he overcomes, every new sound he can make – HUGE!

So if this means living out of an RV for weeks at a time, flying all over the place for various therapies, making immense sacrifices and effort … we will do it. We will do anything that gives him that little bit of extra control so he can access the world around him. So he can understand and express himself. So he can enjoy his life that much more. So he can stay healthy and happy.

He’s so worth it.

My vision board ritual started early last year, when my friend Farnaz invited me to her house to work on a vision board. We had a lovely time working on it and I brought it home and hung it in front of my computer.

Early this year, when I returned home from Chile, I looked at my vision board again and was shocked to see that most if not all of the images that I had on my vision board had become a reality.

Here’s last year’s vision board:

I imagined myself pregnant, travelling, doing yoga, playing tennis and water polo, going on a cruise, meditating, eating healthy, getting closer with Owen, working on my house, doing well at work, unlocking the potential of Nathan’s brain. Everything I dreamed of is now a reality.

I believe in the power of imagination. I believe we create our reality. We cannot use our imagination to change others, but we can use it to change ourselves, our own reality. I have seen over and over this year how a slight shift in how I view things can utterly and completely change my experience of the world. For example, the slight shift of not seeing what Nathan CAN’T do and seeing what he CAN do has made my time with him so much more enjoyable!

I invite you to work on your own vision board. If you create it, believe it, and know that it will happen – in due time – then it is inevitable.

My mom talks about the steps to creating a vision board on her blog. We worked on our vision boards together (as well as my wonderful friend Sarah). Not only was it super inspirational – we had a blast chit chatting and dreaming and creating!

You can read more about the HOW TO of vision boards on my mom’s blog posts:

We are time travellers

Reading and Vision boards

Enjoy!