A little piece of heaven

Yesterday we had our ABR presentation and today our first training.

They have explained to us that for our kids to develop better function their structure has to improve. The way to improve their structure is to apply energy to different areas of their body and this energy will help to restore and improve the structure of their body.

We are still learning about it, but so far, we have been pretty happy with what we’ve learned. It makes perfect sense that we have to improve Nathan’s structure as we know that it will and has decayed because of the brain injury.

So far we’re having a wonderful time. We have met some lovely families and have enjoyed hanging out and exchanging ideas. We met the Gallos and the Smykays and went to the botanical gardens and dinner today. Oh and did you know that Nathan has a fraternal twin?

Let me tell you how identical Nathan and Fletcher are. At one point both boys were outside the room and I heard Nathan make his cute little noises and then I went outside and found out it was Fletcher! They laugh the same, make the same noises, have the same mannerisms and expressions, similar movements…it was amazing. They really enjoyed each other at dinner today, Fletcher would start squeaking and laughing and he would make Nathan laugh who would then start squeakng and laughing. It was so fun to watch them! Below are some pics:





Today we met the lawyer that helped us get Nathan the Kidwalk and the Hart Walker.

Today he has become my new hero.

He has cerebral palsy. He told me that his mom fought for him and helped him and gave him every opportunity in the world.

He graduated from UC Berkeley undergrad and law school. And how he works at a law firm that advocates for children with disabilities.

When I called them asking for help, not only was he happy to help, but he went above and beyond. Even though I thought Nathan could benefit from both walkers, I figured I should choose and fight for just one. He told me that we would ask and fight for both. I was astonished as I would’ve never dared to go that far.

Not only did he dare to go that far but he won the case and got the regional center to fund BOTH the Hart Walker and the Kidwalk!

He gave me so much hope for Nathan’s future and that of other kids with CP.

Anyways…I really should pack and get ready…we have to be at the airport in 8 hours!

We are getting ready to take off to Canada tommorrow to receive training in Advanced Biomechanical Rehabilitation. And all I can say is that I am EXCITED.

I am so happy that we will have this opportunity to practice this treatment on Nathan.

And I am excited to meet other families. We will be meeting Fletcher and Daniel’s family. And many more cool families that we have talked to online.

We will keep posting and letting you know how our trip goes!

I feel like we are on the jetway and getting ready for Nathan to take off. This week felt like we got all of the pieces of the puzzle in place:

* We got the oxygen compressor for the hyperbaric chamber so now we can add about 40% oxygen into the chamber. We set it all up today and today was Nathan’s first full, oxygenated hyperbaric treatment.

* We sent off all of the stool, urine and blood samples to the different test labs so they can examine if Nathan has yeast, candida, fungus, viruses, bacteria, food allergies, heavy metals, etc in his system. Once we get all the results (which will take about a month) we can start Nathan on the biomedical protocol.

* We gave Nathan the first dose of G-therapy today. We didn’t do it quite right but we are learning.

* Nathan’s Kidwalk will be ordered on Monday and it should be here in 2-4 weeks. Yay!!! Nathan can begin learning to walk!

And now we’re getting ready to learn about ABR.

I am excited, hopeful, and happy. I feel that we are on the right path and we have all of the components in place now to really give Nathan every chance available.

And most importantly, we BELIEVE in Nathan’s future and potential, without doubts, questions or hesitations.

So thanks to all of you who keep an eye on Nathan, you’re the best!