Never

Nathan has spent the entire day sleeping. He opens his big beautiful brown eyes for brief moments, looks around to make sure mommy is there, and then drifts back into sleep.

He continues to vomit, and still cannot tolerate any food or liquids.

We did the CT to check on the shunt, still don’t know the results.

His heart is still beating too slowly, but the doctor is not concerned.

I’ve never seen a whole day of Nathan’s life go by without at least one smile from him, until today. I’ve never seen him spend an entire day sleeping, until today. I’ve never seen those beautiful eyes dull and lifeless, staring emptily into space.

I spoke with his spirit today and reminded him how much we love him, how much we need him here, that he is the heart to our bodies.

Please keep praying for him, even though whatever he has probably isn’t serious, I want his soul to feel how loved and needed he is, so he will recover fully and quickly! THANK YOU!

Low heart rate – ideas?

Nathan’s heart rate is hovering in the mid 50’s and low 60’s (during sleep). I’ve never seen his heart rate below 80. They still don’t know what is wrong with him. He is still vomiting and still can’t hold anything down. We still have no diagnosis.

Any ideas about what could be going on? Tests that they could do?

Thanks for your help!

SSV

So far that’s the only diagnosis anyone’s offered – SSV – Some Stupid Virus. All of the test results have come back relatively normal, so the doctors are thinking that the virus also affects the stomach, as well as the upper respiratory system.

What got Nathan into trouble this time is that he hasn’t been able to hold down fluids. So the main fear at this point is dehydration.

They are giving him IV fluids, watching to see if anything else develops, and making sure he is well enough to hold down at least fluids before we go home. I am happy with this plan as I was really really worried about him – I’ve never seen him act so sick. Ever. Even when he had meningitis. I think the combination of dehydration, flu-like symptoms, lack of nutrition, and lack of adequate sleep has been playing a number on him.

We will probably be here until tomorrow. For once I am not eager to rush home – I want to make sure he is well before we take him home.

Seeing him this way has sure made me appreciate my Nathan even more than ever. Right now he is pretty unresponsive – won’t laugh at the usual jokes, won’t smile, he’s not even interested in his movies! I miss my smart, dynamic, funny little boy, and can’t wait for him to feel better so he can go back to his usual self.

Thank you for all the prayers, they are helping him so much! Keep them coming please!!!!! THANK YOU!!!!